14 month-old Kevin Verch developed normally for the first seven months, but his mobility has deteriorated to the point he can barely lift his head.
It’s a rare condition known as SMA-2
He’s undergoing a stabilizing treatment at CHEO, but a miracle drug, zolgenzma, would help him develop a replacement gene and restore his mobility- if he is treated before he reaches age twenty-four months.
The price tag for the miracle cure, in Canadian dollars, is 2.8 million.
As Kevin is a member of the Pikwakanagan First Nation, the pharmaceutical itself may be covered under “Jordan’s Principle”, an initiative that leaves no Indigenous child behind.
That leaves travel and other expenses to be covered, and your generosity is appreciated.
Visit gofundme.com and type in help-lil-kev-beat-sma2
